wfma f,hska bmeÿKq fï ore fofokd
wfka fouqo urejg hkakg /f.kd

l;dj flfia fm<.ia‌jkako lshd is;d .ekSugj;a fkdyelsh' ta ;rugu l;dj ixfõ§h' fujeks ÿla‌nr l;djla‌ weiSuo ieneúkau ÿlls' tfy;a tu ÿl Tng fufia ,shd is; ieye,aÆ lr.ekSug uu woyia‌ lf<ñ'

l;dj fufiah'

pkaok l=vdnKa‌vdr iuDoaê ixj¾Ok ks,Odßfhls' Tyqf.a ìß| ks,ka;s l=udß .=rejßhls' fudjqka Ôj;a jkafka je,suv lemafmáfmd, trnoao .ïudkfhah'

fï hqj<g orejka ;sfofkls' l=¿÷f,au Tjqkaf.a leoe,a,g jika;h /f.k wdfõ mq;a l=ufrls' ld,h f.ù .sfhah' i;=áka msÍ .sh mqxÑ leoe,a, mqxÑ mq;=f.a lsß leá iskdfjka ;j ;j;a iqkaor ;ekla‌ úh' mqxÑ mq;= fmr¿fKah" nv.Efõh" f.a mqrd oK .Efõh' tfy;a ta mqxÑ meáhdg fomhska ke.sg isàug fkdyels úh' Tyq Wm;skau /f.kú;a ;snqfKa m%dKh ksreoaO mdo hq.,la‌h' ,fï fkdorejdg fudk lreuhla‌ m,sika ÿkako, pkaok iy ks,ka;sg tfia isf;kakg we;s' tfy;a Tjqka ;u mqxÑ mq;=f.a m%dKh ksreoaO fomdj,g Ôjh §ug fkd.;a W;aidyhla‌ ke;' yuq fkdjQ fjoeÿfrla‌ ke;' tfy;a Tjqkag ;u orejd fomhska ke.sg isgqùug fkdyelsh úh' Tjqka w;rg meñKs l=¿÷,a orejd ksjfia hyklg muKla‌u iSud úh'

Èk i;s udi wjqreÿ f.ù .sfhah' l÷<ska msreKq Tjqkaf.a Ôú;j,g mqxÑ fyda i;=gla‌ /f.k wdfõ fojeks orejdh'

ta ÈhKshls'

,;ßkaÈ fiõñKs, wehg ku ;eìKs'

pkaokf.a jeäuy,a orejdg jhi wjqreÿ y;la‌ iïmQ¾K jkjd;a iu.u ta fldÆ meáhd ;u uj;a mshd;a ifydaoßh;a w;yer iqrx.kd f,dalhg .sfha lsisfjla‌ fkdis;+ fudfyd;lh' ta orejd fuf,dj yer heug n,mE frda.h Tyqj mÍla‍Id l< lsisu ffjoHjrhl=g fidhd.ekSug fkdyels úh'

jeäuy,a orejdf.a wl,a úfhdafjka fYdalnß; jQ Tjqkaf.a is;a ysñ ysñka h:d ;;a;ajhg m;a fjñka ;sìKs' tfy;a l=¿÷,a orejdf.a u;lh Tjqkaf.a is;aj,ska uelS fkd.sfhah' ;u ÈhKsh ksfrda.Sj jefvñka isáhdh' ta w;r ld,fha§ Tjqkaf.a leoe,a, ;j;a orejl=f.ka yev úKs'

,mqf;la‌''', ks,ka;s fukau pkaok l÷¿ u;ska i;=gq jQy'

,lú÷ wl,xl, ta mqxÑ mq;df.a ku úh'

Tjqkaf.a Ôú; fj<df.k ;snqKq w÷re oidj f.ù f.dia‌ iqn ld,h Wod ù we;ehs pkaok iy ks,ka;s is;+y' Tjqka w;ßka iuqf.k .sh jeäuy,a orejdf.a u;lh yefrkakg Tjqkaf.a is;a i;=áka msÍ .shy'

;ßkaÈ fiõñKs n$lemafmáfmd, uyd úoHd,fha yh jirg iu;a úh' weh bf.k .ekSug Wmka ymkalï we;a;shls' YsIH;aj úNd.fhka ,l=Kq 138 la‌ ,nd.ksñka b.ekSug we;s wehf.a ola‍I;dj fudkjg mila‌ l<dh'

lú÷ wl,xl mqxÑ mq;=g jhi wjqreÿ myls' Tyq ;ju;a fmr mdi,a wOHdmkh ,nkafkah' ndOl lïlfgdÆ ueÈka pkaok ks,ka;s hqj<f.a Ôjk .x.dj .,d niskakg úh' tfy;a Tjqkag ta i;=g jeä ld,hla‌ r|jd.ekSug fkdyels úh' kej; Tjqkaf.a Ôú;j,g w÷re oidj Wod úh'

yo ßojk l÷¿ l;dfõ fodr.=¿ h<s weßKs'''

,ÿjf.a nv widukH f,i f,dl= fjkak .;a;d' wms ÿjj fmardfoKsh uy frday,g wrf.k .syska ffjoHjrekag fmkakqjd' ffjoHjreka ÿjj frdayf,a Èk lsysmhla‌ k;r lrf.k mÍla‍IK l<d' ta mÍla‍IKj,ska mia‌fia ffjoHjreka lsõj orejdg Nhdkl frda.hla‌ yeÈ,d lsh,d' Bg mia‌fi wms fld<U ßþfõ w¾hd <ud frday,g ÿjj f.kjd' oeka ÿjf.a ma,Sydj bj;a lr,hs ;sfhkafk' tfyu lr,d ÿjg fnfy;a lrk w;r;=r ld,fha§ ;uhs mq;df.;a nv bÈfukak mgka .;af;' mia‌fi mq;dj;a wms <ud frday,g fmkakqjd' ffjoHjreka mq;dj n,,d lsõjd thdg;a ;sfhkafk ta frda.hu lsh,d' wfma f,dl= orejd ke;s fj,d ;sfhkafk;a fï Nhdkl frda.h yeÈ,hs lsh,d ;uhs oeka ffjoHjre;a úYajdi lrkafk, pkaokf.a uqj fjõ,kakg úh'

urKh t<sm;a; u; Ôj;a jk ta iuk< megjqka fofokd wm bÈßfhah' wfma l;d nyg Tjqyq lka § isàhy' jfrl ;u ujf.a lKg fld÷r;s' Tjqkaf.a brKu .ek Tjqka lsisjla‌ fkdokakd fiah'

wms kï mqÿu lreula‌ldrfhda i¾''' wfma f,aj,ska fuf,djg ìys lrmq orefjda wfma oeia‌ bÈßmsgu ke;s fjkjd wms fldfyduo n,df.k bkafka''' fï orefjda fokak;a ke;s jqfKd;a wmsg b|,d jevla‌ keye' Bg fyd|hs wms;a uefrkjd, mshl= úiska .eg .ik fujeks jpk fm<la‌ wid isákafka flfiao@ fï wysxilhkag ffojh fu;rï l=reß f,i myr fokafka lsu@ uf.a oEia‌ w.o l÷<la‌ msßKs'

;u frda.S orejka fofokdj fnd/,a, ßþfõ wd¾hd <ud frdayf,a ffjoH idhklg /f.kú;a ;snQ Èkl§ pkaok iy ks,ka;s ,Èjhsk, ld¾hd,hg meñK Tjqkaf.a l÷¿ l;dj wmg lSy'

uõmshka Ôj;=ka w;r isáh§ Tjqkaf.a orefjla‌ u,a jhfia§u ñh.sfha kï ta uõmshkag oefkk fõokdj jpkj,ska úia‌;r l< yelso@ tfukau urKh fmks fmkS isák orefjla‌ ;=re¿ lrf.k isák uõmshkaf.a yoj;aj, f;rfmk fõokdj flfia kï úia‌;r lrkako@ fohsyduqÿrejfkaD fï uõmsh hqj<f.a orejka fofokdu Ôj;a jkafka urKh;a iu.h' tfia kï fï fom<f.a is;a ;=< nqr nqrd k.sk ore ÿl kue;s fõokdj wmg mejiSug fudjqkag isxy, NdIdfõ jpk ;sfío@ flfia fyda Tjqyq wm bÈßfha Tjqkaf.a l÷¿ l;dj fufia jpk njg m;a l<y'

,wms fokaku tlu .fï' ÿr {;slul=;a ;sfhkjd' ta;a f,a kEfhd kï fkfuhs' iuyr wh wykjd wms f,a kEfhdo lsh,d' ffjoHjrekq;a wfmka tfyu weyqjd' tfyu fohla‌ keye' fï lreula‌ldr f,fâ wfma orejkaj ì,s .;af;a wms mQrefõ l< mjlg,

weia‌ f.ä lrljñka wm foi n,d isák ta mqxÑ megjq fofokd foi ne¨ ne,aug kï frda.S njla‌ fkdfmfka' tfy;a Tjqka fofokdg je<£ we;af;a f,dalfha l,d;=rlska wikakg ,efnk Nhdkl frda.hls' tkï ma,Sydj úYd,ùu ^Gaucher Disese& kue;s ÿ¾,N frda.S ;;a;ajhhs'

ma,Sydj úYd,ùfï frda.h hkq cdkuh úlD;s ùula‌ ksid we;s jk frda.S ;;a;ajhls' fuu frda.hg f.dÿre jQjka f,dalfha isákafka b;du w;f<dia‌ils' ,xldfõ fnd/,a, ßþfõ wd¾hd <ud frdayf,a oekg fuu frda.fhka mSvd ú¢k frda.Syq ;sfokl= m%;sldr ,nñka isá;s' fofofkla‌ ;ßkaÈ yd wl,xlh' wfkla‌ orejd nÿ,a, m%foaYfha orefjls'

fuu ÿ¾,N frda.fha frda.S ,la‍IK jkafka YÍrh ;=< wkjYH fïo" ,smsv fldgia‌ bj;a lrk tkaihsu fkdue;sùuhs' ta tkaihsuh fkdue;sùu ksid YÍrh ;=< wkjYH fïo" ,smsv fldgia‌ ma,Sydj" wla‌udj" wegñÿ¿" jl=.vq" fmkyÆ" yojf;a iy fudf<a jeks ia‌:dkj, ;ekam;a fõ' wk;=rej frda.Skaf.a Worh bÈßhg fkrdú;a frda.Skaf.a isrere iqÿue,s fõ' tfukau f,a .ukd.ukhg ndOd we;s ù wjidkfha ñh hhs' frda.fha nrm;< ;;a;ajh tfia pkaokg meyeÈ,s lr § we;af;a fld<U ßþfõ wd¾hd <ud frdayf,a úfYaI{ ffjoH m;auldka;s úfþiQßh uy;añhhs'

fuu frda.h ÿ¾,N .Kfha frda.hla‌ jqjo ffjoH úoHdfõ ÈhqKqj;a iu. f,dalfha we;eï rgj,a frda.h md,kh lsÍu i|yd T!IO fidhdf.k we;' ta Cerezyme ^Imiglucerase for injection& kue;s T!IOhhs' fuu T!IOfhka flfrkafka frda.Skaf.a isref¾ fkdue;s tkaihsuh kej; isrerg ,nd§uh' th isÿjkafka tkak;a fyda fm;s u.sks'

Èhjeähdj" fldf,ia‌gfrda,a jeks frda. T!IO u.ska md,kh l< yels fiau fuu frda.S ;;a;ajho T!IO u.ska md,kh l< yelsh' tfia l< yela‌fla o frda.h y÷kd.;a fudfydf;a isgu läkï m%;sldr ,nd ÿkfyd;a muKs' tfukau fï frda.h je<÷k frda.Skag fjk;a frda.j,g f.dÿreùug fkd§ wdrla‍Id lr .ekSu w;sYhskau jeo.;ah'

w;sYhska ÿ¾,N frda.hla‌ jqjo ÈhqKq ffjoH úoHdj frda.hg fnfy;a fidhdf.k ;sfí' .egÆj ù we;af;a T!IOfha ñ, wêl ùuh' wks;a lreK kï ,xlfõ frday,aj,g fuu T!IOh ;ju;a ,nd§ ke;sluh'

pkaok iy ks,ka;sf.a mqxÑ megjqka fofokdj ure ;=ref<ka .,jd .ekSug kï ta orejka fofokdg jhi wjqreÿ oywg jk ;=re fuu tkaihsuh tkak;a u.ska ,ndÈh hq;=h' wjqreÿ oywfgka miq fm;s u.ska Ôú; ld,hgu frda.h md,kh l< yels nj ßþfõ wd¾hd <ud frdayf,a ffjoHjre fmkajd fo;s'

;ßkaÈ iy wl,xl mqxÑ orejka fofokdg tkaihsu tkak; ,nd§u i|yd udihlg remsh,a ,la‍I 10 1$2 la‌ jeh jk nj ffjoHjre m%ldY lr we;' tkï ;ßkaÈ ÈhKshg udfilg T!IO i|yd remsh,a ,la‍I 6 1$2 la‌ o" wl,xl mq;=f.a T!IO i|yd udfilg remsh,a ,la‍I 4 o jYfhks' fjk;a frda.j,g fukau fuu frda.h i|yd ,xld rch ,mskg, T!IO f.kajd fokafka o ke;' tfia kï Tjqka úiskau fuu T!IOh f.kajd .; hq;=j we;' ke;s kï Tjqkaf.a ÿmam;alug jkaÈ f.ùug isÿjkafka wirK orejka fofokdgh'

pkaokf.a fofk;a kej; l÷<ska msßKs' ks,ka;sf.a fofk;a w.ska .,d hk l÷¿j,g úrduhla‌ fkdue;'

,wïfï nv.skshs, lsisjla‌ fkdf;afrk wl,xl ujg ;j;a ;=re¿ úh'

, wfka uy;a;fhda''' wfma f,dl= orejd wmsg ke;s jqKd' fï orefjd fokakj;a ke;s lr .kak neye' wmsg msysg fjkak' wfma ÿl rgg lshkak' t;fldg wmsg Woõ lrkak leu;s wh Woõ lrhs,

wms i,a,sldrfhda fkfuhs' wmsg uy f,dl= foam< keye' ;snqKq bvï lE,s fol;a úl=Kqfõ orejkag fnfy;a lrkaku ;uhs' f,fâ y÷kdf.k oeka wjqreoaola‌ ú;r fjkjd' ÿjg Y,Hl¾uhla‌ lr,d ma,Sydj bj;a l<d' fuÉpr ld,hla‌ orejkag fnfy;a lf<a Th bvï lE,s fol úl=K, .;a; i,a,sj,skq;a wmsg ,efnk mäfhkq;a ;uhs' tal kï lula‌ keye' orefjda ke;sj bvlvï fudlgo@ oeka wmsg ;sfhkafk bkak f.a lE,a, ú;rhs' wms fokakg ,efnkafk;a mqxÑ mähla‌' b;sx wms fldfyduo uy;a;fhda udfilg remsh,a ,la‍I oyhdudrla‌ fydhkafka,

ffjoHjre lshkafka orefjda fokakd tkak tkaku nrm;< ;;a;ajhg jefgkjd" bla‌ukg tkak; fokak ´kd lsh,d' i,a,s fydhd.kak wmsg uykais fjkak lshkjd' wms;a fï yeu foau lrkafka orefjda fokakj fír.kak ;uhs' orefjda fokak;a tla‌l ? fldaÉÑfha weú;a fldgqj ia‌fÜIka tfla t<sfjklï b|,d t;ekska uQKlg fydaof.k ;uhs wms <ud frday,g hkafka' tajd kï wmsg m%Yak fkfuhs' wmsg ´kd fldfyduyß wfma megjq fokakj Ôj;a lrjkak,

,wms lshkak ;sfhk yeu ;ekgu;a lsõjd' W!j m<d;a uy weue;sjrhd <`.g .syska orefjda fokakj fmkak,u wmsg fj,d ;sfhk úm; .ek lsõjd' ta fj,dfj weue;s;=ud lsõjd fudlla‌ yß Woõjla‌ lrkakï lsh,d' ta;a Bg mia‌fia lsisu l;djla‌ keye' ckdêm;s;=udg ,shqula‌ oeïud' talgj;a ms<s;=rla‌ keye' ;j;a j.lsjhq;= ;ekaj,g .syska wms msysgla‌ b,a,kfldg ta wh lshkjd ,fldfyduo fï fokakg ú;rla‌ fokafk ;j;a rfÜ fldÉpr kï fufyu wirK wh bkakjo, lsh,d wykjd' we;a; uy;a;fhda''' ta;a wmsg bkak ;ekla‌ ke;sj" lkak fndkak úÈyla‌ ke;sj fkfuhs wirK fj,d bkafka" ;u orejkaj uefrk nj oek oek;a Ôj;a fjkak jqKq ksihs' b;sx uy;a;fhda wms jf.a wirKfhda ;j;a fï ,xldfõ bkakjo@

ffjoHjre lshkjd ckdêm;s;=udj uqK.eys,d orefjda fokakj fmkak,u ms<sirKla‌ b,a,kak lsh,d' wms idudkH ñksia‌iq uy;a;fhda' wms fldfyduo tl mdrgu ckdêm;s;=ud .djg hkafka,

wvqu ;rñka ckdêm;s wruqof,kaj;a wmsg msysg jqfKa keye' ckdêm;s wruqof,ka wdOdr fok frda. ,ehsia‌;=fõ fï frda.h ke;sÆ' ta ksid wdOdr uqo,la‌ fokak neßÆ' wfma orefjda fokak;a fï rfÜu orefjd fokafkla‌' rchg hq;=lula‌ ;sfhkjd ta fokakj fír.kak' ta ;d;a;d flfkla‌ yeáhg ta hq;=lu bgq lrkak lsh,d wms ckdêm;s;=udf.ka b,a,kjd' wmsg fjk lshkak flfkla‌ keye' ;j lshkak ;sfhkafk Wv bkak foúhkag ú;rhs' ta whg;a yeuod;a wfma ÿl lshkjd' ta;a msysgla‌ keye' wmsg orefjd fokakj fír.kak neßfjhso uy;a;fhda'''

fkdis;+ fudfyd;l ks,ka;s weiQ mekfhka wmsÿ ksre;a;r úuq' fudfyd;lg wfma ixjdoh k;r úh' uõmsh fom<lf.a fï id fõokd;aul ia‌jrhla‌ uu kï lsisu Èkl wid ke;' mgdpdrd" lsidf.da;ñh ú¢ fõokdj fï uõmsh hqj< o ú¢k njg ielhla‌ ke;'

isfhd<`.Û f,duq oeye.kajk fï l÷¿ l;dj wm lSfõ W;a;u udkqISh ixfõokdj y÷kk ñksiqkagh' oeka b;sx ks,ka;sg;a pkaokg;a Tfí msysg yefrkakg irKla‌ ke;' mud fkdjkak tfia jqjfyd;a Tjqka fom<g orejka ;sfokdu ke;s ù Tjqkaf.a Ôjk .uk o k;r jkq we;'

ukqIH;ajfha hq;=lu bgq lsÍug Tn úÿ,shla‌ fuka fõ.j;a jk nj wms fyd¢kau oek isáuq' ukao wms irKla‌ wjeis ñksiqkag irKla‌ jkakehs lshd ,shQ iEu igyklgu yels muKska Tnf.a fkduiqre odhl;ajh ,eî we;s nj wms oek isák fyhsks' ;ßkaÈ iy wl,xl fjkqfjka Tng hula‌ lrkakg yels kï je,suv ,xld nexl= YdLdfõ tia‌' ta' l=vdnKa‌vdr uy;df.a 3552720 hk .sKqug Tnf.a mß;Hd. ner l< yelsh' pkaok iy ks,ka;s iu. jpkhla‌ fyda l;d lsÍug wjeis mß;Hd.YS,Skag fukak Tjqkaf.a ÿrl:k wxlh' 0754110785' jpkhlska fyda Tjqkaj ffO¾hj;a lsÍug yels kï th o mskaluls'

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